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Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Other Health Conditions (Healthy Living Cookbooks) Author: Raman Prasad ISBN-10: 159233282X ISBN-13: 9781592332823 Published: 2008-02-01 Publisher: Fair Winds Press
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Book Description:
The Specific Carbohydrate Diet (SCD) is a strict grain-free, lactose-free, and sucrose-free dietary regimen intended for those suffering from Crohn's disease and ulcerative colitis (both forms of IBD), celiac disease, IBS, cystic fibrosis, and autism. For those suffering from gastrointestinal illnesses, this book offers a method for easing symptoms and pain, and ultimately regaining health. Recipes for the Specific Carbohydrate Diet(TM) includes a diverse and delicious collection of 150 SCD-friendly recipes and more than 80 dairy-free recipes. The easy-to-make and culturally diverse recipes featured in the book include breakfast dishes, appetizers, main dishes, and desserts, such as Hazelnut-Vanilla Pancakes, Olive Sandwich Bread, Chicken Satay, Roasted Bass with Parsley Butter, Thin Crust Pizza, Gretel's Gingerbread Cookies, and Mango Ice Cream. Full-color photos will inspire you to get cooking again. In addition, personal anecdotes accompany each section of this book. Find out more at www.scdrecipe.com/cookbook/.
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Alex: The Life of a Child Author: Frank Deford ISBN-10: 1558535527 ISBN-13: 9781558535527 Published: 1997-08-01 Publisher: Thomas Nelson
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Book Description:
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex. Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."
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The Power of Two: A Twin Triumph over Cystic Fibrosis Author: Isabel Stenzel Byrnes ISBN-10: 0826217540 ISBN-13: 9780826217547 Published: 2007-10-05 Publisher: University of Missouri Press
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Book Description:
The tragedy of cystic fibrosis has been touchingly recounted before, but this is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their struggle to pursue normal lives while grappling with the realization that they might die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural heritage Japanese and German influenced the way they coped. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. These two remarkable sisters have much to teach about the power of perseverance and about the ultimate power of hope.
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Taking Cystic Fibrosis to School Author: Cynthia S. Henry ISBN-10: 1891383094 ISBN-13: 9781891383090 Published: 2000-09 Publisher: JayJo Books
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Book Description:
These beautifully illustrated and fun-to-read storybooks simplify and normalize complicated childhood conditions, like cystic fibrosis. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe. Each book includes a Kids' Quiz to reinforce new information and Ten Tips for Teachers to provide additional facts and ideas for teacher use.In Taking Cystic Fibrosis to School, Jessie explains to her classmates that even though she has cystic fibrosis, she can still attend school.
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Give Me One Wish: A True Story of Courage and Love Author: Jacquie Gordon ISBN-10: 0393025187 ISBN-13: 9780393025187 Published: 1988-02 Publisher: W W Norton & Co Inc
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Cystic Fibrosis in the 21st Century (Progress in Respiratory Research) Author: ISBN-10: 3805579608 ISBN-13: 9783805579605 Published: 2005-10-07 Publisher: S Karger Pub
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Book Description:
Cystic fibrosis used to be thought of as a respiratory and digestive disease, with a uniformly and rapidly fatal outcome. The spectrum of the disease has broadened into the mild atypical case, presenting in middle age, with the potential for complications in virtually every system of the body. In the past few years there has been an explosion of knowledge of the basic science of the defect. The editors have therefore invited the leading scientists and clinicians in the field of cystic fibrosis to describe the recent advances in this disease. Although there are many 'Recent Advances' texts, previous books have been selective in their choice of topics. This book is the first to cover the entire field of this complex disease, and encompasses the rapidly moving topics of the basic molecular and cellular biology as well as the recent multi-system, multi-disciplinary advances in the clinical care of patients.The authors have been charged with writing only about new developments and not to rehash old literature. The bulk of the references is therefore less than five years old. This book addresses all professionals who treat cystic fibrosis and want to have an update of new findings in the field, particularly of those outside their immediate specialisation. It will also be useful for basic researchers interested in related scientific areas and the clinical context of their work.
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Cystic Fibrosis: A Guide for Patient and Family Author: David Michael Orenstein ISBN-10: 0397516533 ISBN-13: 9780397516537 Published: 1997-01-15 Publisher: Lippincott Williams & Wilkins
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Book Description:
This guide offers clear explanations and advice on cystic fibrosis and its management. It seeks to provide practical and reassuring information for patients, families and health care professionals, on issues such as school, travel, exercise, nutrition and medication, as well as on psychological effects, treatments, complications, long-term issues, and the prospects of a cure. Each chapter begins with a "quick list", so the reader can know at a glance what topics are covered.
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Every Precious Breath:Inspirational Stories about Living with Cystic Fibrosis Author: Tom Valenta ISBN-10: 0855724072 ISBN-13: 9780855724078 Published: 2011-04-15 Publisher: Michelle Anderson Publishing Pty Ltd
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Book Description:
In Every Precious Breath the author tells the story of his two grandsons and discovers that people living with CF and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational. The book follows the life and death experiences of people with CF and their families. For families there is the burden of caring for a child who every day requires dozens of pills, inhaled medicines and airway clearance. There are the frequent trips to clinics, hospital and hospital in the home. For people with CF there is the knowledge that they have shorter life expectancy than their peers, that they may require lung and other organ transplants and that their ambitions for family and career will be tempered by their condition. For them every breath they take is indeed precious.
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Understanding Cystic Fibrosis (Understanding Health & Sickness Series) Author: Ph.D. Karen Hopkin ISBN-10: 0878059660 ISBN-13: 9780878059669 Published: 1998-07-01 Publisher: University Press of Mississippi
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Book Description:
Cystic fibrosis (CF) is the most common genetic disorder in the white population. Since the discovery of the CF gene in 1989, scientists have learned a great deal about the biology of this disease, which strikes one child in every 3.300 births. With the gene pinpointed, scientists are now working on ways to replace it and are developing better tests for early diagnosis.Understanding Cystic Fibrosis charts the progress that has been made in identifying the mutations that cause CF and in understanding how these genetic errors cause a disease whose symptoms can range from mild respiratory distress to life-threatening lung infections.This book features a review of current available treatments; research that can lead to therapies and perhaps a cure; advice and resources for families and patients; how to work best with health-care providers and HMOs; the history and diagnosis of CF; who gets CF and why; how CF affects the lungs, intestines, and other organs; and a list of organizations, support groups, and resources.
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In Sickness and In Health: Lessons Learned on the Journey from Cystic Fibrosis to Total Health Author: Mandy B. Anderson ISBN-10: 0615541100 ISBN-13: 9780615541105 Published: 2011-12-02 Publisher: Mandy B. Anderson
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Book Description:
If you or a loved one has lived with a life threatening disease, you may have noticed over time life becomes defined by that disease, leaving in its wake broken dreams, a passion for living, and worst of all, hope. Mandy lets you peek into her mind as she takes you on her journey to true wholeness. A mind filled with conflict, of a girl not expected to live past ten years old, but with dreams so much bigger. She gives insight, wisdom, and tools learned from her own overcoming to help you live your life and your destiny, despite what your circumstances look like. Discover: - The key to conquering fear - Simple steps to break free for a life without limits - Choices you can make to live vibrantly - How to step into your destiny—despite your circumstances - Strategies for health and wellness Here's what Readers are saying: “A must read if you want to break free and live your destiny.” - Joy “Mandy, I had a huge lightbulb go off as I was reading this. Thank you for being such a powerful example for the rest of us.” - Victoria “This is a very powerful message that spoke to my heart. Thank you.” - Crystal “…as a mom of three children with CF, I found your words to be inspiring and comforting” - Amy Mandy B. Anderson dreamed of becoming a professional singer, despite being born with cystic fibrosis (CF), a disease that severely limited the very breath she needed to sing. Overcoming statistics of an early death, a fire that destroyed her and her husband Nate’s home, and the limits of her own mind, Mandy has become a sought after inspirational speaker, coach, author and singer who has written and produced multiple songs. She currently resides in North Dakota with her husband, Nate and their dog, Ajah.
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